Making Ready
We moved furniture to make it easier for the ambulancemen to get Eric into the bungalow. (We had it in our heads they'd bring him in his hospital bed- which is ridiculous because they'd have needed an ambulance the size of a removals lorry.) In the event the bed came by itself (in easy-to-assemble parts) and Eric followed on a stretcher. Before he arrived we had a call from the hospital asking us if we realized he might die in transit. Later I read the notes that came with him and saw this is something they're obliged to do- to stop them being sued (I guess).
Ailz got the family album out. Most of the people in it are strangers to me. Even Dot was uncertain about one or two of the earlier faces- a boy soldier of the Great War for instance. A crow alighted on a rail outside the conservatory and peered in at us through the French doors.
Eric is comfortable. Semi-comatose. Medication has been withdrawn; he isn't eating.
Ailz got the family album out. Most of the people in it are strangers to me. Even Dot was uncertain about one or two of the earlier faces- a boy soldier of the Great War for instance. A crow alighted on a rail outside the conservatory and peered in at us through the French doors.
Eric is comfortable. Semi-comatose. Medication has been withdrawn; he isn't eating.
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But if the patient is marked for tender loving care only, everybody needs to agree that there won't be any diversions to the emergency department - the staff discharging him, the family receiving him, the ambulance crew, and the patient himself if he can understand.
(Because in the past there have been screw ups when people said they wanted to go home to die and then ended up dying on trolleys in emergency departments because the ambulance crew felt obliged to 'save' them, as they usually would.)
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Ailz is going to be spending a lot of time with him. He doesn't seem aware of much, but who knows?
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I don't have any great words here, and I'm not sure that's a reasonable thing to be looking for in such an individual and personal situation, but it must be difficult, and I am sorry for that, and I wish you all whatever grace there is in this.
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I just looked up cachexia on Wikipedia. The doctors don't really understand it. I guess the Greek name gives them an illusion of control.
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I entirely agree with what you say.
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